Changing the conversation about work and cancer

Useful Links

Short Information Films

Our Founder Barbara Wilson has been working with Lymphoma Action for the past 12 months on supporting its service users to manage work and cancer – to manage work, return to work or to find work after a cancer diagnosis. These workshops were also run in partnership with Shine Cancer Support.

Earlier this year, Barbara took part in a series of short films for Lymphoma Action where she provides detailed advice and guidance and lots of tips on how to successfully manage work and cancer in the workplace.

Below are the links to the films:

Top Tips for Employers
Rachel’s Experience
Advice and Top Tips
Your Questions Answered

Lymphoma Action
3 Cromwell Court
New Street
Aylesbury
HP20 2PB

Tel: 01296 619400
Email: enquiries@lymphoma-action.org.uk
www.lymphoma-action.org.uk

Further Resources

Macmillan

www.macmillan.org.uk A variety of information – booklets and fact sheets – about cancer, cancer treatments and its effects on life and work can be ordered from Macmillan.

To order, visit be.macmillan.org.uk. or call 0808 808 00 00

You can also download from here the following useful pdfs:

Managing cancer in the workplace: An employers guide to supporting staff affected by cancer

Work and cancer: A guide for people living with cancer

Working while caring for someone with cancer: A guide to coping with work when you are caring for someone with cancer

Self-employment and cancer: A guide for the self-employed about work and cancer

Help with the cost of cancer: A guide to benefits and financial help for people affected by cancer

Your rights at work: A guide to your employment rights including carers’ rights

Key Websites

Cancer Research UK

Contains patient information on all types of cancer.
www.cancerhelp.org.uk

National Cancer Institute – national Institute of Health – USA

Gives information on cancer and treatments.
www.cancer.gov

Dept for Work and Pensions

Covers a number of issues including work, benefits, retirement and disability.
www.dwp.gov.uk

Directgov

The UK government’s digital service for people in England and Wales. Includes details on how to contact your local Jobcentre.
www.direct.gov.uk

NHS Choices

The country’s biggest website and gives all the information you need to make decisions about your health.
www.nhs.uk

NHS Direct Online

NHS health information site for England.
www.nhsdirect.nhs.uk

NHS 24 in Scotland

NHS health information site for Scotland.
www.nhs24.com

NHS Direct Wales

NHS health information for Wales.
www.nhsdirect.wales.nhs.uk

Patient UK

Provides non-medical people in the UK with information about health and disease. Also reviews and links to many health and illness related websites.
www.patient.co.uk

TUC

Has information about employment and disability rights.
www.worksmart.org.uk

Other useful organisations

Access to Work

Provides advice and support to people with long term health conditions and their employers to help meet the costs associated with work-related obstacles.

South East and East England/London
020 8426 3110
Scotland and Northern England 0141 950 5327
South West England, Wales and Central England 029 2042 3291
www.gov.uk/access-to-work

Access to Work (Northern Ireland)

Gives support and advice to employees with disabilities and their employers.
www.nidirect.gov.uk

Advisory, Conciliation and Arbitration Service (ACAS)

Helpline 0300 123 1100 (available Monday to Friday 8am-6pm)

ACAS provides free and impartial advice about employment rights and about employment disputes.
www.acas.org.uk

ACAS also publish a very helpful guide on dealing with bereavement

Developed in partnership with Cruse Bereavement Care (see below) and many other organisations.
Managing bereavement in the workplace – a good practice guide

Evenbreak

Evenbreak is a specialist online job board which can help you find work with employers who are inclusive and value their staff.

402 Metro Central Heights
London SE1 6DX
Tel: 0845 658 5717
www.evenbreak.co.uk

Equality Advisory Support Service

Promotes equality and provides information to people about their rights.

Freepost FPN 4431
Tel 0808 800 0082
Textphone 0808 800 0084
www.equalityadvisoryservice.com

Equality Commission Northern Ireland

Aims to advance equality, promote equality of opportunity, encourage good relations and challenge discrimination through promotion, advice and enforcement.

Tel 028 9050 0600
www.equalityni.org

My Doctor London

Provides a range of high quality, affordable and convenient Medical Services in Central London, including GP appointments, blood tests, prescriptions, imaging and specialist referrals. We can provide medical and occupational health advice regarding work-related issues for people affected by cancer.

Tel 020 3026 6254
email: enquiries@mydoctorlondon.co.uk
www.mydoctorlondon.co.uk

Financial and Legal Advice

Benefit Enquiry Line Northern Ireland

Provides information and advice about disability benefits and carers’ benefits in Northern Ireland.

Tel 0800 220 674
Textphone 0800 243 787
www.nidirect.gov.uk/money-tax-and-benefits

Citizen’s Advice

Citizen’s Advice Bureaux provide free, confidential, independent advice on a variety of issues including financial, legal, housing and employment.

Find contact details for your local office in the phone book or at citizensadvice.org.uk
Find advice for the UK online in a range of languages at adviceguide.org.uk

Citizens Advice Scotland

www.cas.org.uk

Department for Work and Pensions (DWP)

Manages state benefits in England, Scotland and Wales.

Disability Benefits Helpline 08457 123 456
Textphone 0845 722 4433

Personal Independence Payment Helpline 0845 850 3322
Textphone 0845 601 6677

Carers’ Allowance Unit 0845 608 432
Textphone 0845 604 5312

www.gov.uk/browse/benefits

Law Society

Can provide details of solicitors in England and Wales

113 Chancery Lane
London WC2A 1PL
Tel 020 7242 1222
www.lawsociety.org.uk

Law Society of Scotland

Can provide details of solicitors in Scotland

26 Drumsheugh Gardens
Edinburgh EH3 7YR
Tel 0131 226 7411
Email lawscot@lawscot.org.uk
www.lawscot.org.uk

Law Society of Northern Ireland

96 Victoria Street, Belfast
BT1 3GN
Tel 028 9023 1614
www.lawsoc-ni.org

National Debtline (England Wales and Scotland)

A national telephone helpline for people with debt problems. The service is free, confidential and independent, and the call handlers also distribute free self-help materials.

Tricorn House, 51-53 Hagley
Road, Edgbaston,
Birmingham B16 8TP
Freephone 0808 808 4000
www.nationaldebtline.org

Personal Finance Society

The UK’s largest professional body for independent financial advisers. Use the ‘Find and Adviser’ website to find qualified advisers in your area.

‘Find an Adviser’ service
42-48 High Road, South Woodford,
London E18 2JP
Tel 020 8530 0852
Email info@findanadviser.org
www.findanadviser.org

Turn2Us

A charity providing an online service to help people in financial need in the UK. Use its website for free to see information about the benefits and grants available from both statutory and voluntary organisations. You
can often apply for support from the website.

1 Derry Street
London W8 5HY
Helpline 0808 802 2000
Email info@turn2us.org.uk
www.turn2us.org.uk

Unbiased

Provides advice about benefits and financial issues. You can also search for a financial adviser.
www.unbiased.co.uk

StepChange Debt Charity

Provides free debt advice through phone, email,its website and online via live chats with advisers.

Wade House, Merrion Centre
Leeds LS2 8NG
Tel 080 0138 1111
www.stepchange.org

Insurance

Insurancewith

Insurancewith are a specialist travel insurance provider for those with pre-existing medical conditions including cancer.
www.insurancewith.com

J D Travel Insurance

Provides cover for people with pre existing medical conditions, for single trip and annual policies. Travellers undergoing treatment might be able to get cover. They can’t offer cover if you’re taking part in a clinical trial. They are also unable to offer cover for people who are expected to live less than 6 months after the holiday return date.

Phone: 0344 247 4749
Email: mail@jdtravelinsurance.co.uk
www.jdtravelinsurance.co.uk

Orbis Insurance

Provides cover with no upper age limit for people with pre-existing medical conditions, for single trip and annual policies. They might ask if you are on a clinical trial.

They offer cover for anyone who is undergoing treatment or waiting for treatment, but they cannot cover people who have been ill for less than 6 months.

Phone: 01274 518 393
Email: orbistravel@riskalliance.co.uk
www.orbisinsurance.co.uk

Insurance Choice

Offers travel insurance to any UK or EU residents with pre existing medical conditions. There is no upper age limit. They cannot offer cover for people who have been told that they have less than 6 months to live from the date of return from a trip.

Phone: 01926 680 319
www.insurancechoice.co.uk

Freedom Insurance

Offers specialist travel insurance for people with cancer. They may not be able to offer cover if the cancer has spread. They are also unable to offer cover to anyone waiting to have surgery or inpatient treatment.

A very large insurance company called AXA underwrites their cover (this means AXA guarantees payment in case of financial loss).

Tel: 01223 446 914 (8.30am to 5.30pm Monday to Friday, 9am to 5pm Saturday)
Online enquiry form
www.freedominsure.co.uk

Insure Cancer

Covers people with cancer for all destinations, including the USA. They will consider cover for people who are having treatment, waiting for treatment, taking part in a clinical trial and people with advanced cancer.

Their main requirements are that your condition is stable and your consultant gives approval for you to make the trip. They’ll need a form saying this.

Phone: 01252 780 190 or 0845 649 0190 (9am to 5pm Monday to Friday)
Email: enquiries@InsureCancer.com
www.insurecancer.com

Free Spirit Travel Insurance

A specialist travel insurance policy for people with pre existing medical conditions, including cancer.

You may be able to get a quote online, but they might ask you to phone them if they need more information about your current health. Phone for a quote if your cancer is advanced and you’re no longer having active treatment, rather than trying online.

They are unable to cover people over 80 years of age if they have a terminal prognosis. They are unable to offer cover for the USA , Canada, China, Hong Kong or the Caribbean to people who have been told they have terminal cancer.

Phone: 0800 170 7704 (8am to 6pm Monday to Friday)
Email: contact@freespirittravelinsurance.com
www.freespirittravelinsurance.com

World First

World First provides travel insurance for people with existing medical conditions. They provide cover for all destinations, including the USA, for many different types of cancer. They might also be able to cover you if:

  • your cancer has spread
  • you have had chemotherapy in the last three months or you’re having
  • chemotherapy at the moment
    you are taking strong painkillers
  • your cancer is unlikely to be cured

You can get a quote either online or by phone, by providing information specific to your cancer type and treatment.

Phone: 0345 90 80 161 (Monday to Friday 9am to 5.30pm, Saturday 9am to 4pm)
Email: info@world-first.co.uk
www.world-first.co.uk

Travel Insurance

This link may be handy in explaining medical travel advice.
https://www.travelinsuranceexplained.co.uk/

Equipment and advice on living with disability

The Blue Badge Scheme (Dept of Transport)

The scheme allows people with severe mobility problems to park close to their destination. The scheme is administered by local authorities who deal with applications and issue badges.

Tel: Contact your local authority

www.gov.uk/browse/driving/blue-badge-parking
(England, Scotland and Wales)

https://www.nidirect.gov.uk/articles/blue-badge-scheme-guide-badge-holders
(Northern Ireland)

Disability Rights UK

A national charity which works to improve the living standards of disabled people. Provides information about benefits and disability rights.

12 City Forum, 250 City Road
London EC1V 8AF
Tel 020 7250 3222
www.disabilityrightsuk.org

Disabled Living Foundation

A national charity that provides free, impartial advice about all types of disability equipment and mobility products through its helpline, website and demonstration centre.

380-384 Harrow Road
London W9 2HU
Helpline 0845 130 9177
Email helpline@dlf.org.uk
www.dlf.org.uk

Motability Scheme

Enables disabled people to exchange their higher rate mobility component of Disability Living Allowance or their War Pensioners’ Mobility Supplement to obtain a new car, powered wheelchair or scooter.

Warwick House, Roydon Road
Harlow, Essex, CM19 5PX
Tel 0845 456 4566
Minicom 9845 675 0009
www.motability.co.uk
www.dlf.org.uk

Advice about appearance and nutrition

Beauty Despite Cancer

Provides advice about skin care, hair care, cosmetics and appearance to women affected by cancer and supplies products which can be given as gifts to those undergoing cancer treatment. Also provides more general information about cancer including employment issues.
www.beautydespitecancer.co.uk

Body Soul Nutrition

Provides useful information about nutrition for a healthy lifestyle
www.bodysoulnutrition.co.uk

Support for Carers

Carers UK

Offers information and support to carers. Can put people in contact with local support groups.

Tel (England, Scotland, Wales) 0808 808 7777
Tel (Northern Ireland) 028 9043 9843
Email advice@carersuk.org
www.carersuk.org

Carers Direct

Provides information to help carers access the financial help they’re entitled to, as well as advice on getting a break from caring and going to work.

Tel 0808 802 0202
www.nhs.uk/carersdirect

Cruse Bereavement Care

Provides bereavement counselling, information and support to anyone who has been bereaved. Has a network of branches across the UK.

PO Box 800, Richmond, Surrey
TW9 1RG
Tel 0844 477 9400
Young person’s helpline 0808 808 1677
Email helpline@cruse.org.uk
Young person’s email
info@rd4u.org.uk
www.crusebereavementcare.org.uk

The Loss Foundation

The Loss Foundation is a registered charity providing support to people who have lost loved ones to cancer; spouses, family members, friends.

For information on any of their services you can contact Erin at erin@thelossfoundation.org or 07732-070-972.

For information about their research into complicated or prolonged grief you can contact Kirsten at kirsten@thelossfoundation.org

Other organisations offering support to cancer survivors

ASTRiiD

Aiming to connect the millions of people with chronic, often incurable and advanced health conditions with businesses seeking skilled volunteers or staff, ASTRiiD (Available Skills for Training, Refreshing, Improvement, Innovation and Development), is a first-of-its-kind professional matchmaking service. The ground-breaking charity helps people affected by chronic illness find a sense of normality through flexible employment.

www.astriid.org.uk
Contact

Cancer Black Care

Offers a range of information and support for people with cancer from ethnic communities, their friends, carers and families. Welcomes people from different ethnic groups.

79 Acton Lane
London NW10 8UT
Tel 020 8961 4151
Email info@cancerblackcare.org
www.cancerblackcare.org.uk

Dimbleby Cancer Care (Charity & Research Office)

Dimbleby Cancer Care was established in memory of Broadcaster Richard Dimbleby and exists to offer care and support to people living with cancer and to their families and carers. It has also developed the Cancer Care Map,a simple, online resource that aims to help people find cancer-related services in their local area.

4th Floor Management Offices
Bermondsey Wing
Guy’s Hospital
Great Maze Pond
London SE1 9RT

Tel: 020 7188 7889
Email: admin@dimblebycancercare.org
www.dimblebycancercare.org
www.cancercaremap.org

Something To Look Forward To

Something To Look Forward To is an award winning social action charity which improves the emotional health and wellbeing of people affected by cancer and cancer poverty in the UK. They provide donated gifts and experiences including cottage holidays, restaurant meals, hotel stays, spa breaks, tickets to attractions, clothes vouchers and much more! They support people with any cancer diagnosis and their friends, families and carers up to one year post last treatment and offer continued support to people with a secondary diagnosis or who are receiving palliative care. Please visit www.somethingtolookforwardto.org.uk to find out more and to access this service.

Email francesca@somethingtolookforwardto.org.uk
www.somethingtolookforwardto.org.uk

Ellie’s Friends

Ellie’s Friends is an online platform that enables adults living with cancer to access free and discounted services or products in their area.

The Eleanor Rose Foundation
C/O Objective Productions/2LE Media
Riverside Building
County Hall
Westminster Bridge Road
London
SE1 7PB

Tel: 07969 600673
Email: info@eleanorrose.org
www.elliesfriends.org

Inspiring Enterprise

Inspiring Enterprise is a project that helps unemployed and inactive people start their own business or become self-employed. We offer 1 to 1 support with advice, ideas and business planning, Business Essentials training courses, peer networking and workshops. The project is funded by the National Lottery Community Fund and the European Social Fund. All the support is free for eligible people. The service is mainly delivered in the Enterprise M3 LEP area. This covers large parts of Hampshire and West Surrey. Find more information here

WSX Enterprise
Wates House
Wallington Hill
Fareham PO16 7BJ

Tel: 0800 140 4537
Email: connect@inspiringenterprise.org.uk
www.inspiringenterprise.org.uk

Irish Cancer Society

Operates freephone cancer helpline, which is staffed by qualified nurses trained in cancer care. You can also chat online and use the site’s message board.

43-45 Northumberland Road
Dublin 4, Ireland
Helpline 1800 200 700
Email helpline@irishcancer.ie
www.cancer.ie

Healthtalkonline

Contains information about some cancers and has video and audio clips of people talking about their experiences of cancer and its treatments.

www.healthtalkonline.org
www.youthhealthtalk.org (for young people)

Leukaemia and Lymphoma Research

Dedicated to researching blood cancers including leukaemia, lymphoma and myeloma. Research focuses on finding causes, improving diagnosis and treatments and running trials for people with blood cancer.

39-40 Eagle Street
London WC1R 4TH
Tel 020 7405 2200
Email info@beatbloodcancers.org
www.leukaemialymphomaresearch.org

Lymphoma Action

The UK’s only charity focused exclusively on providing specialist information and support to help lymphoma patients, their relatives, friends and carers. They help people feel less vulnerable, more confident and more in control, which helps them cope and deal with their treatment.

3 Cromwell Court
New Street
Aylesbury
HP20 2PB
Tel: 01296 619400
Email: enquiries@lymphoma-action.org.uk
www.lymphoma-action.org.uk

Maggie’s Centres

Located throughout the country, Maggie’s Centres are places to turn to for anyone affected by cancer. You can access information, benefits advice, and emotional or psychological support free of charge and under one roof. You don’t have to make an appointment or be referred.

1st Floor, One Waterloo Street
Glasgow G2 6AY
Tel 0300 123 1801
Email enquiries@maggiescentres.org
www.maggiescentres.org

Mesothelioma Guide

Mesothelioma Guide provides patients and their loved ones with resources, answers, and information over a wide spectrum of free assistance options. We know the learning curve with this disease is steep. But with our help, we hope to bend that curve to a manageable level, and provide our patients with a sense that they always have someone to lean on.

https://www.mesotheliomaguide.com/mesothelioma/

Mission Remission

Mission Remission is an innovative new platform connecting & empowering cancer survivors. We provide a place to read and share experiences and practical strategies for life after cancer.

www.mission-remission.com

Cancer Support – Scotland

Offers information and support for cancer patients, families, friends and health professionals. Runs a network of monthly support groups across Scotland. Also provides counselling and complimentary therapies.

75 Shelley R0ad, Glasgow G12 0ZE
Tel 0800 652 4531
Email info@cancersupportscotland.org
www.cancersupportscotland.org

Rarer Cancer Foundation

The Rarer Cancers Foundation exists to ensure that people with rarer cancers have access to the best services and outcomes.

www.rarercancers.org.uk

Riprap

Developed especially for teenagers who have a parent with cancer.

www.riprap.org.uk

Tenovus

Based in wales, Tenovus provides a range of services to people with cancer and their families, including counselling, an ‘ask the nurse’ service and benefits advice.

9th Floor, Gleider House
Ty Glas Road, Llanishen, Cardiff CF14 5BD
Helpline 0808 808 1010
Tel 029 2076 8850
Email post@tenovus.com
www.tenovus.org.uk

Cancer Focus Northern Ireland

Provides a range of services for people with cancer and their families, including a free telephone helpline, which is staffed by specially trained nurses with experience in cancer care.

40-44 Eglantine Avenue, Belfast BT9 6DX
Helpline 0800 783 3339
Tel 028 9066 3281
Email hello@cancerfocusni.org
www.cancerfocusni.org

Yes to Life

Yes to Life empowers people with cancer to make informed decisions about their cancer care options. We provide information to guide people through the confusing options for care and lifestyle choices.

Our aim is to help them make informed choices. We simplify the complex and facilitate access to expert knowledge.

Unit 4
The Energy Centre
Bowling Green Walk
London N1 6AL
Helpline 0870 163 2990
www.yestolife.org.uk

Helpful Books

Coping with Chemotherapy and Radiation

Gives information on how radiotherapy and chemotherapy work, how the treatment may affect you and how to cope with and reduce the side effects.

Daniel Cukier et al
McGraw-Hill Contemporary 2004 £8.99

The Cancer Survivor’s Companion

Helps cancer survivors deal with the emotional and psychological impact of cancer. Full of practical advice.

Dr Frances Goodhart and Lucy Atkins
Piatkus 2012 £7.99

The Cancer Survivor’s Handbook

For people who have completed their treatment. It looks at some of the issues people might face after treatment, such as side effects, diet and exercise, sex and fertility, work and support.

Terry Priestman, Sheldon Press 2009 – £7.99

A Guide to Grants for Individuals in Need 2009/2010

A directory of charities and trusts that provide financial assistance to people in need. A copy is available in most public libraries.

Directory of Social Change 2009 – £50.00

Other key reports and publications

Rethinking cancer The Big ‘C’

Quantifying the social and economic impact by Helen Creighton, Brian beach and Sally-Marie Bamford

Published by ILC www.ilcuk.org.uk

Download PDF

After the Treatment Finishes – Then What?

Article by Dr Peter Harvey, Consultant Clinical Psychologist

Download PDF

Living with Lymphoma

Download a new useful resource from the Lymphoma Association to help those affected by lymphoma

Download PDF